Albinism Umbrella (AU) exists as a voice that engages the community to reduce the vulnerability of people with albinism, promoting and protecting them against violation of their rights.

Their main programmes can be summarised in four broad categories, i.e. social justice, livelihood, health and security. Albinism Umbrella employs multiple approaches to achieve its objectives. They work through community-based organisations, seek support both locally and globally. Some of the underlying activities include the provision of sunscreens, counselling and guidance, legal aid support, and lobbying and advocacy.

Albinism Umbrella did a spatial mapping in 10 districts of Eastern Uganda which revealed that PWA are marginalised in service delivery due to various reasons like lack of data, limited awareness and negative prejudices. This research was a great accomplishment. They also pride in sending the first-ever PWA to work with Parliament of Uganda as a result of our advocacy work.

Albinism Umbrella is part of the national task force for the implementation of the Regional Action on albinism in Uganda. A national action plan for Uganda is underway to domesticate the regional action plan.

Design Phase (6 months)

The Unknown about albinism project profiles and maps households with Persons with Albinism in Northern, Western and Central Uganda as a basis for advocacy and access to services.

The project has the following specific objectives;

1. To create a comprehensive database for People with albinism in Northern, Western and Central Uganda.

2. To promote the formation of support groups of People with Albinism at grassroots levels as a basis for accessing health, education and other mainstream services.

3. To empower People with Albinism with advocacy skills through the support groups to enable them to lobby for their rights.

4. To influence national policy to enhance inclusion of People with Albinism in mainstream development based on the data collected.

The project increases visibility and recognition of albinism as a disabling condition and the support structures created facilitate advocacy access to services across the country. Ultimately the project empowers the albino community by increasing their self-esteem and confidence and enhancing opportunities for them to participate effectively in mainstream development processes in the country.