Profiling People with Albinism is a spatial mapping project, using GPS mapping to profile people with albinism and their households to create a database and open data kits to collect data on health, educational background, and social economic status. The purpose of this is to better support service delivery, to empower and strengthen their influencing capacity as a marginalised and vulnerable community.

Ultimately, the mapping supports the following interventions:

• To encourage community leaders to support family and community protection for PWAs.
• To support the local council in ensuring parents provide adequate care and support to PWAs.
• To ensure that the police provides protection for PWAs and enforces the law against those who abuse the rights of PWAs.
• To ensure that health workers provide physiological support to first time mothers and continued support to parents of PWAs.
• To ensure that district council includes issues of protection and support to PWAs in their strategic plans.
• To guarantee that civil rights groups use this information to advocate for the rights of PWAs.
• To work with school administrators to enact rules and regulations against name calling and bullying of PWAs.

For more information on the launch of the study please watch this Youtube video.