{"id":19899,"date":"2023-02-13T10:59:40","date_gmt":"2023-02-13T09:59:40","guid":{"rendered":"https:\/\/voice.global\/?post_type=blog&p=19899"},"modified":"2023-04-11T11:00:13","modified_gmt":"2023-04-11T09:00:13","slug":"handicap-pas-fatalite","status":"publish","type":"blog","link":"https:\/\/voice.global\/fr\/blog\/handicap-pas-fatalite\/","title":{"rendered":"Le Handicap n\u2019est pas une fatalit\u00e9!"},"content":{"rendered":"

Ecrit par Fati YABILAN, Charg\u00e9e de lien, Apprentissage et Amplification <\/strong><\/p>\n

Handicap rare et complexe, le polyhandicap se pr\u00e9sente comme une d\u00e9ficience motrice et une d\u00e9ficience intellectuelle s\u00e9v\u00e8re ou profonde, entra\u00eenant une restriction extr\u00eame de l’autonomie en affectant principalement la communication, la socialisation, la mobilit\u00e9 et la vie journali\u00e8re. Ces implications varient consid\u00e9rablement selon que le polyhandicap est de naissance ou bien acquis. La qualit\u00e9 de la vie des enfants et adultes polyhandicap\u00e9s est grandement influenc\u00e9e par la connexion, le soutien appropri\u00e9 et les interactions avec la famille, les amis, les pairs, l\u2019acc\u00e8s \u00e0 des ressources appropri\u00e9es, en mati\u00e8re d\u2019\u00e9ducation, d\u2019activit\u00e9 et de vie sociale.<\/p>\n

Inclusion Sans Fronti\u00e8re ISF, partenaire de Voice sur la subvention d\u2019autonomisation a pour vocation de venir en appui aux jeunes polyhandicap\u00e9es \u00e0 travers leur projet\u00a0\u00ab\u00a0Acc\u00e8s aux jeunes polyhandicap\u00e9s aux services d\u2019accompagnement\u00a0\u00bb<\/p>\n

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Inclusion Sans Fronti\u00e8re ISF<\/figcaption><\/figure>\n

Pour toute personne polyhandicap\u00e9e il nous semble que le risque majeur serait l\u2019isolement total r\u00e9sultant de la combinaison de plusieurs facteurs comme entre autres\u00a0: l\u2019incompr\u00e9hension par le monde qui l\u2019entoure de ce qu\u2019il exprime et donc une situation de non-communication\u00a0; l\u2019assignation \u00e0 fixit\u00e9 ou bien une mobilit\u00e9 extr\u00eamement r\u00e9duite ; l\u2019impossible acc\u00e8s aux informations qui lui sont tr\u00e8s n\u00e9cessaires tant au jour le jour que pour son inscription sociale.<\/p>\n

En somme, la vie de l\u2019enfant ou de l\u2019adulte priv\u00e9 des deux sens majeurs, ou fortement limit\u00e9, est difficilement imaginable par autrui et sa parole \u00ab\u00a0inentendable\u00a0\u00bb. Il se voit d\u00e9nier (ou en tout cas fortement suspecter) sa capacit\u00e9 d\u2019expression et de r\u00e9ception, d\u2019\u00e9change signifiant avec autrui, sa citoyennet\u00e9.<\/p>\n

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Photo marche de l’espoir<\/figcaption><\/figure>\n

Ces limites soulignent donc fortement l\u2019enjeu\u00a0: le r\u00f4le-cl\u00e9 possible \u00e0 jouer par les politiques publiques pour mettre en place une approche par les capabilit\u00e9s qui ne soit pas r\u00e9ductible \u00e0 la seule r\u00e9silience des individus mais qui rel\u00e8ve plut\u00f4t d\u2019une coaction visant la communication sociale et la pleine citoyennet\u00e9.<\/p>\n

La Marche d\u2019espoir permet d\u2019adresser un message aux d\u00e9cideurs politique pour l\u2019\u00e9tablissement de la carte d\u2019\u00e9galit\u00e9 des chances\u00a0: Couverture des frais li\u00e9s au handicap\u00a0; gratuit\u00e9 des soins m\u00e9dicaux publics\u00a0; assistance personnelle pour la surdic\u00e9cit\u00e9\u00a0; priorit\u00e9 pour les places assises dans les lieux publics conform\u00e9ment \u00e0 la convention relative aux droits des personnes handicap\u00e9es et \u00e0 la l\u00e9gislation nationale.<\/p>\n

Si l\u2019\u00e9galit\u00e9 est bien inscrite dans la d\u00e9claration des droits de l\u2019homme et aux frontons de nos \u00e9coles et autres lieux publics, pour autant, sa mise en actes et m\u00eame sa mise en mots sont encore lointaines. Le discours de la d\u00e9ficience que nous tenons parfois conduit \u00e0 la p\u00e9rennisation de la perception des personnes polyhandicap\u00e9s comme des \u00eatres lacunaires, et de fait les maintient dans une position de soumission qui fait obstacle \u00e0 l\u2019\u00e9mergence de l\u2019autonomisation.<\/p>\n

\"\"
Photo marche de l’espoir<\/figcaption><\/figure>\n","protected":false},"excerpt":{"rendered":"

Ecrit par Fati YABILAN, Charg\u00e9e de lien, Apprentissage et Amplification Handicap rare et complexe, le polyhandicap se pr\u00e9sente comme une d\u00e9ficience motrice et une d\u00e9ficience intellectuelle s\u00e9v\u00e8re ou profonde, entra\u00eenant une restriction extr\u00eame de l’autonomie en affectant principalement la communication, la socialisation, la mobilit\u00e9 et la vie journali\u00e8re. Ces implications varient consid\u00e9rablement selon que le […]<\/p>\n","protected":false},"author":15,"featured_media":19902,"template":"","categories":[],"tags":[],"country-cat":[],"publisher":[62],"class_list":["post-19899","blog","type-blog","status-publish","has-post-thumbnail","hentry","publisher-voice"],"yoast_head":"\nLe Handicap n\u2019est pas une fatalit\u00e9! - Voice.Global<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/voice.global\/fr\/blog\/handicap-pas-fatalite\/\" \/>\n<meta property=\"og:locale\" content=\"fr_FR\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Le Handicap n\u2019est pas une fatalit\u00e9! - Voice.Global\" \/>\n<meta property=\"og:description\" content=\"Ecrit par Fati YABILAN, Charg\u00e9e de lien, Apprentissage et Amplification Handicap rare et complexe, le polyhandicap se pr\u00e9sente comme une d\u00e9ficience motrice et une d\u00e9ficience intellectuelle s\u00e9v\u00e8re ou profonde, entra\u00eenant une restriction extr\u00eame de l’autonomie en affectant principalement la communication, la socialisation, la mobilit\u00e9 et la vie journali\u00e8re. 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